CRIGLER NAJJAR
SYNDROME
Home International Crigler-Najjar Registry and Associations
Links to several Crigler-Najjar Associations wordwide, to the International Crigler-Najjar Group and to personal webpages of Crigler-Najjar patients.
THE CRIGLER NAJJAR ASSOCIATION (USA)
CNA / King’s Way Foundation c/o Cory Mauck 3134 Bayberry Street Witchita, Kansas 67226 e-mail: mauckc@msn.com Web Page: http://www.criglernajjar.com
THE CRIGLER NAJJAR ASSOCIATION (ITALY)
CI AMI / Crigler-Najjar Italia Associazione Malati Iperbilirubinemici Via Ivo Peli, 21
40033 Casalecchio di Reno (Bologna) Italye-mail: info@ciami.it Web Page: http://www.ciami.it
THE CRIGLER NAJJAR ASSOCIATION (FRANCE)
Associacion Française de Crigler-Najjar 8 rue Henri Golaudin
92140 CLAMART (FRANCE)e-mail: crigler-najjar@9online.fr Web Page: http://crigler-najjar.9online.fr/index.html
THE CRIGLER NAJJAR ASSOCIATION (THE NETHERLANDS)
HET NAJJAR FONDS Het Najjar Fonds Secretariaat: Oranjeweg 34 1241 XS Kortenhoef (NL) tel: 035 - 6564121 e-mail: secretariaat@najjar.nl Web Page: http://www.najjar.nl/
THE CRIGLER NAJJAR ASSOCIATION (SPAIN)
AESCN - Asociación Española de Síndrome de Crigler Najjar C./ Cañada Rosal, 10 B 33519 - Asturias (Asturias)Teléfono: 985 724 832 e-mail: laplazacorreo@yahoo.es Web Page: http://es.geocities.com/sindromecriglernajjar/
List of parents, patients and healthcare providers, sharing common experiences about Crigler-Najjar syndrome type I and II.
THE CRIGLER-NAJJAR SYNDROME GROUP
THE CRIGLER-NAJJAR SYNDROME NEWSLETTER
Newsletter made by Crigler-Najjar families. It is a way to stay connected with other Crigler-Najjar families. If you would like to receive a copy or send a story about your experience with Crigler-Najjar syndrome, please contact the Hiscock family at the following address:hiscock@optonline.net
Click here to see the CNS FAMILY NEWSLETTER
THE CRIGLER-NAJJAR SYNDROME PHOTO-ALBUM
PERSONAL WEB PAGES:
Gabriella's Crigler-Najjar Page
Personal page of a Crigler-Najjar patient.
Elias's Crigler-Najjar Page
Personal page of a Crigler-Najjar patient from Spain.
The Carmaichel Family Web Page
Contains details on how to build a sit-up light unit for phototherapy.
Bobby, Brooke, Brianna and Brenden Page
Personal page of Crigler-Najjar parents from Arizona.
Kately's Light.
Personal page of Kately Bachman a Crigler-Najjar patient from Texas.
Tosif and Madiha Page
How Tosif made a sit up light unit.
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