They refused to talk openly on their messageboard with everyone concerned about these points Online.
Online.
Dirty Dublin Cows with Dublin Attitude
... lol.
I would like to say in Public
Thank You to Saint Vincent De Paul for supporting me both emotionally and financially over the past two years.
They are a Voluntary Charity who supports people in our community who run into trouble in lots of different ways.
Thanks u people, without people like you,
Ireland's lesser well off would be a lot lesser well off.
I think that the Polititions of this Country have lost touch with reality on the ground.
They know about the Poverty and Problems out there but they do not have any real idea of the reality of living with those Problems every day, they need to go sit in a wheeler for a week and experience what the realities are like for us trying to continue with a life worth living...
from Rooster to:
Holly, Donna, Lynne, Babs and her MS Partner, Ger, Caroline, Jean, Dixie, John, Sandy, Eimear, Pam, Sandra, Sile, Nic, Jojo, Batty, Ray, Veronica, Heidi-dk,
Heidi-USA, Daniela, Jessica, Lennie Lou, Vanessa, Suiko, Raven, Oprah, Paige, Lisa SA, Mojo, Jennifer, Helen, Gabby, Candy, Pooh, Alsez, Howard, John and many more online MS friends that I've made here in Ireland and abroad.
I have one Little Friend left in the World to take care of and believe me I will.
Do You Really Want To Know??
I’ve had a few people ask me about the Disability scale of MS. It’s official name is “Expanded Disability Status Scale” (EDSS).
The EDSS is a very brief summary that gauges the person’s disability by their neurological impairment. However, please, use this only as a reference. It is more important that you maintain your own beliefs on where you are and what your future is. Don’t let this gauge set your future for you by expecting the progression to take place. Always keep a positive attitude!
The EDSS scores range from 0 to 10, with the higher scores indicating a more severe disability.
Score = 0 (Normal Neurological Exam)
Score = 1.0 – 1.5 (No Disability)
Score = 2.0 – 2.5 (Minimal Disability)
Score = 3.0 – 3.5 (Mild to Moderate Disability)
Score = 4.0 – 4.5 (Severe Disability)
Score = 5.0 – 5.5 (Ability to Walk Becomes More Limited)
Score = 6.0 – 6.5 (Assistance in Walking Becomes Necessary)
Score = 7.0 – 7.5 (Wheelchair Restricted)
Score = 8.0 – 8.5 (Bed or Chair Restricted; Need Help to Care for Yourself)
Score = 9.0 – 9.5 (Bedridden; Completely Dependent
Score = 10.0 (Death Due to Multiple Sclerosis)
If your like me, your score changes constantly before it settles at one place for awhile. Last fall I was scoring about a 5.5. Right now I am scoring about a 3.
I got lucky….again… But I wonder how long I can stay this way before that score stays at 5.5 and then progresses from there.
Every time I relapse I speculate on the outcome. Always knowing my odds aren’t the greatest, but trying not to waiver on my positive outlook. I think that’s the most important aspect of staying well and hopefully by now, you’ve noticed my emphasis on that in everything I’ve written for this website.
So….remember! Do not use this scale as a “tell all” to where you are with this disease. Classify yourself by taking the score that you have been maintaining for awhile. Not one during a relapse. Even if your relapse lasts a long time, it doesn’t mean you will remain disabled to that same extent forever. Stay focused on beating this disease! Don’t let this scale tell you who you will be down the road. It’s us against “it”. And we are going to beat “it”!
Link.