Upcoming CFS/FMS/OI
Events
in the
US National Capital Area
Northern Virginia, Washington, DC, and Suburban MD
View our simplified CFSupport
 .
NOVA CFS/ME, FMS & OI SG
meetings are usually the
3rd Saturdays, 2-4 p.m.
(ends closer to 4:30 for speaker meetings)
Sully Governmental Center
James McDonnell Room
4900 Stonecroft Blvd, Chantilly VA 20151
Free, close parking. No stairs.
Same building as the Fairfax
Co. Sully District
Police Station
Outside 495, The Capital Beltway
South of Dulles Airport and
South of Route 50
North of Manassas, North of Route 66, North
of Route 29
Very close to the interection of Westfields Blvd
and Route 28
Sully
Directions Page
Please refrain from wearing scented products. Thank you.
CFS, CFIDS, M.E. ~ Chronic
Fatigue Syndrome, Myalgic Encephalomyelitis
FM, FMS ~
Fibromyalgia Syndrome
OI ~ Orthostatic
Intolerance (Becoming more symptomatic when upright and still)
POTS ~ Postural Tachycardia
Syndrome
NMH ~ Neurally
Mediated Hypotension
MVPS/D ~ Mitral
Valve Prolapse Syndrome / Dysautonomia
2009 NOVA CFS/ME, FMS, &
OI Meeting
Schedule Overview
(CHANTILLY, VA, unless otherwise
noted)
Jan 17 -
Medical Qigong & Self-Health. Matt Hayat, PhD, NMQ
Feb 28 - 4th Saturday, 2 pm - 4 pm,
discussion meeting
Mar 21 - "Update on
Orthostatic Intolerance in Chronic Fatigue Syndrome
(CFS)"
Peter Rowe, MD, of Johns
Hopkins.
Apr 18 - Discussion
Apr 25 - "CFS: Is Oxygen
the Problem and Why?" Paul Cheney, MD, PhD
(Location: Fairfax Gov't
Center, 6-9 pm, 4th Saturday)
May 12 -
Awareness Day.
Activities TBD
May 16 - Discussion
June 20 - TBD
July 18 - 10
am - 12 pm. TBD
Aug 15 - TBD
Sep 19 - 10
am - 12 pm. TBD
Oct 17 - TBD
Nov 21 - TBD
Dec 19 ~ Social/ POTS Luck
April 2009
- Saturday
April 25, 2009, 6 - 9 pm: SPECIAL EVENT &
LOCATION **
"Chronic
Fatigue Syndrome (CFS):
Is Oxygen the
Problem and Why?
A Four-Part
Treatment Protocol"
Fairfax County Governental Center - The
Board Auditorium
12000 Governmentt Center Parkway
Fairfax,
VA 22035
CFSupport's Written Driving Directions and Travel Notes
CFSupport's Map to the Event Location
CFSupport's Map Inside the Building
Hosted
by
NOVA CFS/FMS Support Group
and co-sponsored by
CFS
& FM Support Group of Dallas/ Fort Worth, TX
Speaker: Paul Cheney, MD, PhD
CFS and Environomental Illness (EI)
Expert
of The Cheney Clinic in Asheville,
NC
In
addition to presenting a broad overview of CFS including
important principles, case definition, clinical findings, objective
data, key medical literature, Dr. Cheney will present on oxygen
toxicity as well as his latest four-part treatment protocol:
Oxygen
Toxicity as a Controlling Factor for CFS
This
section of the presentation will focus on the research finding of
nearly 100% toxicity in CFS patients when oxygen is
administered.
Dr. Cheney will present evidence that patients categorized according to
increasingly powerful treatment protocols were transformed to an
increasingly oxygen tolerant state. The most powerful treatment
protocol was also associated with significant overall clinical
improvement. Conclusions drawn from this are CFS is an oxygen toxic
state, oxygen toxicity status appears to determine outcome in
therapeutic trials, and oxygen toxicity is key to
this
illness. These findings appear to force a narrowing of potential causes
of CFS because whatever pathophysiology one puts forth must explain
universal oxygen toxicity in CFS. Dr. Cheney will also present recent
evidence of the likely cause of this oxygen toxicity.
For more: Oxygen Toxicity as a Locus of Control for CFS
Cell
Associated Therapy for Chronic Fatigue Syndrome:
Is
this the Next Frontier?
Dr.
Cheney will discuss the use of low molecular weight (LMW), mammalian
tissue derived peptides as therapeutic agents when applied to the skin
using novel transdermal gels. These LMW peptides are known to control
gene expression and can shift organ function toward normal. Data will
be presented from a one-year prospective trial in CFS using these LMW
peptides which produced significant improvement in function. Therapy
with LMW peptides from cell associated, mammalian tissue homogenates
appear to offer a significant benefit in CFS, especially where it
counts the most, namely, the functioning of the patient. (or
...
namely, the patients' ability to do more and feel better.)
For more: Cell Associated Therapy for Chronic Fatigue
Syndrome: Is this the Next Frontier?
Registration,
cancellations requested to, for more info,
contact
NOVA Leader Elly Brosius at (703) 968-9818 or
cfsupport-owner@yahoogroups.com
Free seminar.
Please do not wear scented products.
Event will be video taped for
possible future DVD sales.
Any changes regarding this event will be
posted on the
NOVA group's Events Web Page:
geocities.com/cfsnova/events.html
See also the DFWcfids.com page on Dr. Cheney
includes artilces,
interviews and treatment protocols.
"Hypnotherapy and Chronic
Pain"
Richard Klimek PhD, Psychologist
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
TELECONFERENCE
For those with CFS, FMS, and/or OI
A
mind-body-spirit discussion Conference Call.
Join our email list for the
ph number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
May 2009- May
12, 2009: International CFIDS, FM, CIND Awareness Day
May 12, 2009, 2nd Tues, 12-2
PM: NOVA MVPS/ D & OI
Support Group
By
teleconference!!**** Let's call this one our Awareness day event.
No registration required.
People w/CFS/FMS
also welcome since often have overlapping symptoms.
Free,
but any long distances telephone charges apply.
Sign up for montly reminder emails conference calls and codes at
mvps-d_oi_nova at Yahoo,
write mvps-d_oi__nova-owner@yahoogroups.com
or call 703-968-9818
or 410-647-7578 for information.
(CFSupport email members also get reminders with number and code.)
-
May 16,
2009, 3rd Saturday,
2 - 4 pm: NOVA
CFS/FMS Support Group
Discussion meeting.
Sully
Governmental Center, James McDonnell Room (same building as
Sully District Police Station) 4900 Stonecroft
Blvd, Chantilly VA 20151. Free. No registration
required. (703)
968-9818, (410) 647-7578.
See also:
Meetings, Directions.
- May
18. 2009, Monday Series,
1:30 - 3 pm: Pain
Connection Speakers
"Communication Skills
andTechniques
for Couples & Family Members"
Anita
Bains,
LCSW
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
Eastern Loudoun
(Cascades) Library
21030 Whitfield
Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information,
email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st
Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
A meeting of the CFSAC, held
in
Washington, D.C. Agenda usually includes health agency
updates and public
testimony. This meeting is at
the Department of Health and Human Services, Hubert H. Humphrey
Building, 200 Independence Avenue, SW, Room 800, Washington, DC 20201.
Photo ID req'd. Open to the public. Pre-registration required
for public testimony with Dr. Wanda K. Jones, Deputy
Assistant Secretary for Health (Women's Health), (202) 690-7650. The
CFIDS Association's meeting reports, dating back to 2003 are
available as are schedule
updates, reports via
the CFIDSLink. See also the About
the CFSAC.
Reston Town Center
11900 Market St,
Reston VA 20190
Sponsored by the Sjorgren's Syndrome Foundation
(800) 475-6473
In addition to support groups
having tables, there will be booths by
booths, a "Walkabout,"
a Simon Says exercise warm up,
Door Prizes, Games, and
Interactive Exhibits.
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
June 2009
Overland
Park, Kansas
For more information, see the FCI
website at
http://www.fibrocoalition.org/
Speaker:
Martha Calihan, MD
Lansdown Leesburg Hospital
44045 Riverside Parkway, Leesburg, VA
Conference room A/B
(No longer a monthly group.)
For
more information, contact
CFSupport
at 703-968-9818.
PDF Flyer for Loudoun Group
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
Hospitality Room (1st
Floor)
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
Eastern Loudoun
(Cascades) Library
21030 Whitfield
Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information,
email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
"Treating Pain with
Acupuncture"
Lisa Marie Price, L.Ac., Dipl. Ac.
Holiday Park Senior
Center, 3950 Ferrara
Dr, Wheaton MD 20906
(240) 777-4999 (directions only)
For info, Pain Connection Support Groups,
call (301) 309-2444.
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
July 2009 Eastern Loudoun
(Cascades) Library
21030 Whitfield
Place, Sterling VA 20165. Free.
Across library from the front door, a
smaller room enclosed in glass.
For information,
email Patti
or Rowena or
Adriana
Also has a Walk &
Chat subgroup, a movie going subgroup.
Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For more inform, contact Andrea, or
call Marielle (301) 718- 9326.
For those with CFS/FMS/OI.
Mind-body-spirit Conference Call.
Join our email list for the
number and code or
call 703-968-9818,
write eggdish-owner@yahoogroups.com
or see EGG.
No
fee, but each caller pays his or her own long
distance charges.
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