CFSupport

The Northern Virginia
CFS/ME & FMS
Support Group
 
Associations & Groups

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CFS/CFIDS, M.E., FM/FMS, Chronic Pain, OI, MCS, GWI

Association & Support Group Directories
CFS /ME
Fibromyaliga
Dysautonomia
Support Group
&
Association
Links
 US STATES
COUNTRIES
WITHOUT BORDERS
Directories of Groups
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Northern VA; Metro Washington, DC; Baltimore, MD
Mid-Atlantic Regional
Details for
Professional
Organizations		 US & International Professional Organizations
for CFS, FM, and other
"Other Illness"
Support Groups
Wash DC Area		 DC, MD, VA: Chronic Illness Support Groups 
Includes: IC, Lyme, Pain, NVA-Vulvodynia, MCS, & more


Please, help keep this page up to date. Write Elly Brosius at

cfsupport-owner@yahoogroups.com
 

Some acronyms listed stand for
chronic fatigue syndrome, myalgic encephalomyelitis, fibromyalgia
chronic pain, orthostatic intolerance, multiple chemical sensitivities,
gulf war illness, and similar multi-symptom disorders.

Northern Virginia, Washington DC, and Suburban Maryland CFS/FM/OI Groups

  • CFSupport - Northern VA CFS/FMS Support Group     [Founders of this site!]
    NOVA CFS/ME, FMS, & OI Support Group
    14404 Brookmere Drive
    Centreville VA 20120-4107 USA
    Phone: (703) 968-9818 - Elly Brosius
    Phone: (410) 647-7578 - Toni Marshall
    Web 1: http://www.geocities.com/cfsnova/ (One click Spanish Translation)
    Web 2 for yahoo email, etc: http://health.groups.yahoo.com/group/CFSupport
    Email: CFSupport-owner@yahoogroups.com
     To subscribe, see web or send blank email to CFSupport-subscribe@yahoogroups.com
    Meetings: 3rd Saturday of each month (usually), 2-4pm, (usually) at 
    Sully Governmental Center new location for 2009
    4900 Stonecroft Blvd, Chantilly, VA 20151. See also list of Events.
    2009 Speaker/Topic Schedule
    Jan 17  -  Medical Qigong & Self-Health. Matt Hayat, PhD, NMQ
    Feb 28 -  4th Saturday, 2 pm - 4 pm, discussion meeting
    Mar 21 - "Update on Orthostatic Intolerance  in
                    Chronic Fatigue Syndrome (CFS)" 
                    Peter Rowe, MD, of Johns Hopkins.
    Apr 18 -  Discussion
    Apr 25 -  "CFS: Is Oxygen the Problem and Why?"  Paul Cheney, MD, PhD
                    (Location: Fairfax Gov't Center,  6-9 pm, 4th Saturday)
    May 12 - Awareness Day. Activities TBD
    May 16 - Discussion
     June 20 - TBD
    July 18 - 10 am - 12 pm. TBD
    Aug 15 - TBD
    Sep  19 - 10 am - 12 pm. TBD
    Oct  17 - TBD
    Nov 21 - TBD
    Dec 19 ~  Social/ POTS Luck

    Once again, repeating: 2009 -Location change.... to Sully Governmental Center, 4900 Stonecroft Blvd., Chantilly, VA 20151. 3rd Saturdays at 2 pm except February (28th at 2 pm), July and September (3rd Sat at 10 am).

     
  • Elly's Gratitude Group (EGG)
    A volunteer and peer led discussion group for people with CFS, FMS and OI, focusing on the healing power of gratitude to transform hearts, health, and life with debilitating conditions. We practice appreciation to accelerate healing. Monthly meetings by US national teleconferences. Callers only pay for their own long distance charges, use free minutes, or a phone card. Occasional in person locations include Northern VA and suburban DC restaurants and libraries. Dates and times also vary and are announced via the Events page, EGGdish Y! group e-mail, and our EGG Resources Page. Call Elly  703-968-9818 or Toni (410) 647-7578.


  • Bethesda Fibromyalgia / CFS Support Group
    Email: Andrea
    Phone: (301) 718-9326, Marielle.
    Meetings: Christ Lutheran Church, 8011 Old Georgetown Road, Bethesda MD 20814
                     Hospitality Room (1st Floor).
    2009 Dates: Alternating Tuesday and Wednesday nights.      7 - 9 pm.
    Jan 14, Feb 17, Mar 18, Apr 21, May 20, June 16. 
    (Note: this group used to meet at Holy Cross Hosp, then Bethesda Library.)


Other: Chronic Illness Groups for DC Area (Arthritis, IC, Lyme, Pain,...)

  • Northern Virginia Brain Injury Association
    P.O. Box 2148
    Springfield, VA 22152
    Helpline: 703-569-1855
    Web: http://www.nvbia.org/
    Email: info-nvbia@nvbia.org
  • Northern Virginia Interstitial Cystitis Support Group
    A group for anyone with interstitial cystitis (IC), a condition involving persistent discomfort in the bladder and the surrounding pelvic region. 
    Contact: Myra at 703-765-6221.
    Call for current meeting information. Used to be, may still be 2nd Thursday of each month at 7:30 p.m. at Lincolnia Senior Center, 4710 N. Chamblis St., Alexandria, VA.
  • Northern Virginia Well Spouse Support Group
    A group sponsored by the Well Spouse Foundation,     a national organization supporting spouses caring for a chronically ill or disabled spouse. Meets the third Monday of each month from 7:00 - 9:00 PM at Kings Park Library, 9000 Burke Lake Road, Burke VA 22015. For more information, contact Dorothy Saunders at 703-425-2430 or dmsaundersinva@hotmail.com. Also see August 2004 article in Washington Post.
  • Washington DC NVA Vulvodynia Support Group
    Sponsored by National Vulvodynia Association, for women with chronic vulvar pain.
    Headquarters: 301-299-0775
    DC Area Group Leader:
    Kathy, 703-335-8286, Contact_Leader@yahoo.com
    Updated!
    Meetings typically are 11 am to 1 pm in Room A-5 of the Martin Luther King Memorial Library, located close to all Metro lines, in Washington, DC.  It is a one-block walk from either Gallery Place/Chinatown or Metro Center.  When  walk in at street level, go to elevators and down to Level A. When exit the elevator, look for a sign for Exhibition Hall.  Walk through the Hall and out the other door.  From there you will see a sign for room A-5.  Library phone and address: 202-727-0321. MLK Library, 901 G Street NW, Washington DC 20001.
     
    The MLK Library has a free parking garage.  Park in a non-reserved spot.  To enter the library from the parking garage, go through the area for security screening.  Please tell the attendant that you are there for an NVA meeting.  Then, take the elevator to Level A.  When you exit the elevator, you will see a sign for an Exhibition Hall.  Walk through it and out the other door.  From there you will see a sign for room A-5.  Please note that if parking in the garage, you will be fined if you leave the building (without car?).
     
    The 2008 schedule, ...
     

  • Vulvar Pain Support Group - Maryland
    Meets the third Saturday of each month at 1:30 pm at the Crofton Library. 
    1657 Crofton Centre, Routes 3 and 424, Crofton.
    For information, call 410-721-1583.

  • Sjogren's Syndrome Foundation
    6707 Democracy Blvd
    Bethesda, MD 20817
    Toll Free: 800-475-6473
    Web: http://www.sjogrens.org/
    Hosts a free, annual Autoimmune Disease Health Fair. Next one in DC area is May 30, 2009, 9 am to 12 pm, at Reston Town Center. 


More MidAtlantic Regional CFS/FMS Support Groups: VA, MD


MD:

National USA and International Organizations

OI-MVPS-POTS-NMH-Dysautonomia:

Support Groups, Associations, Contacts for CFS/FMS


 

USA State-by-State CFS/FMS Support Groups & Organizations

Including the big organizations/associations that have lectures, help you find groups...
(Abbreviations: lu = last updated; SG = support group)
AK AL AR AZ CA CO CT DE FL GA
HI IA ID IL IN KS KY LA MA MD
ME MI MN MO MS MT NE NV NH NJ
NM NY NC ND OH OK OR PA RI SC
SD TN TX UT VA VT WA WI WV WY
             DC
Alaska

Outside USA Country-by-Country CFS/FMS Support Groups & Organizations
Great Britain Canada Australia New Zealand Sweden Argentina
Netherlands France Germany Belgium Spain Slovenia
Switzerland Japan Denmark     Jump to USA

Note: To translate a site into your (your browser's) native language, copy the actual web address once you go there and paste into a Google search box. If the page found, choose "Translate this page" option.
United Kingdom
  • England/UK
Argentine
CFS/FMS Support Groups and Contacts that cross borders




Directories of CFS/FMS Contacts; good to find groups without websites:
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Updated March 31,  2009
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