Activism
by
Lyme Disease Patients
and
Investigations of Lyme Disease Physicians
Lyme disease is a serious bacterial infection caused by a tick bite and
affects humans and animals.
Table of Contents
Upcoming or Recent Lyme Disease Events
Organizations of Lyme disease activists
Web pages on Lyme disease activism or political activities
Lyme Disease March on Washington - annual event during month of May
Past Lyme disease activism and protest events
Miscellaneous articles regarding Lyme disease activism
Investigations of Lyme disease physicians by NY Office of Professional Medical Conduct (OPMC)
Investigation of Allen Steere in Massachusetts
Lyme disease activism resources
General Activist Resources
State medical boards resources
Also see:
For more information on Lyme disease
Activism by Lyme Disease Patients and Investigations of Lyme Disease Physicians
Upcoming or recent Lyme disease events
Lyme Aid 2001, Gettysburg, Pennsylvania - Outdoor Country Music Festival, August 11, 2001 and National Convention at Liberty Mountain, August 12, 2001
LYME AID 2001 - A concerted effort to beat the disease, Gettysburg Times, 13 Aug 01
Lyme-Aid 2001 - August 11, 2001 - Gettysburg, Pennsylvania - T.O.F.U., Inc.
Lyme Aid 2001 - The Entertainment - Gettysburg Times
LYME AID 2001
T.O.F.U. - Ticked Off and Fed Up, Inc. presents The National Lyme Convention, August 12, 2001
National Convention at Liberty Mountain - August 12, 2001
Maps and Directions, Gettysburg.com
Organizations of Lyme disease activists
Ticked Off and Fed Up, Inc. (T.O.F.U.)
Foundation for the Advancement of Innovative Medicine (FAIM) - The New York LD Controversy
Web pages on Lyme disease activism or political activities
Cheryl's Lyme Action Page
[lots of information on upcoming events, letter writing, action announcements, and more]
Links/Contacts for Lyme disease activism and Allen Steere action
James Martin's LD Horror Story - How LD And Exploitation of ERISA Laws Can Ruin A Life
TV Interview Notes, Lyme Disease Information and Support, Nancy B., Dec. 15, 1999
Lyme Alliance Petition for Lyme disease - signature count as of 11 Jul 01: 21,790
The Peoples' Petition supporting Dr. Burrascano - signature count as of 11 Jul 01: 835
Medical Community Petition in Support of Joseph J. Burrascano, MD - Sig. count 11 Jul 01: 197
Lyme disease March on Washington (MOW) - annual event during month of May
Post MOW Press Release: Dodd and Santorum Introduce Lyme Disease Bill
LDF Press Release, Lyme Disease Awareness Month Begins With D.C. Rally
Lyme disease victims seek aid in D.C., New Haven Register, 4 May 2000
March On Washington (MOW) 2000 (lots of photos) - 3 May 2000
More MOW photos - 3 May 2000
March On Washington (MOW) May 3, 2000, guidelines/suggestions
Lyme Disease DC Rally [Re: March on Washington (MOW) May 3, 2000]
Yahoo! Groups: March on Washington (MarchDC) - email list
Lyme Disease Foundation Press Release: Lyme Disease Rally, Washington DC, May 5, 1998
National Lyme Disease Awareness Month, Wake-up Washinton Rally! May 1, 1997
Wake-Up Washington Rally, News Release, Tuesday, May 14, 1996
Lyme Patients to Demonstrate at NJ Medical Board, "Tick Bite Fight", October 11, 1995
Past Lyme disease activism and protest events
New York Lobby Day - March 27, 2001
Lyme disease press conference and support for Dr Burrascano - 9 Nov 2000
American College of Rheumatology Annual Scientific Meeting - 1 - 2 Nov 2000
ALDF "Gala" benefit to honor Allen Steere, 1 June 2000
Texas Lyme Hearing #'s 1 and 2 and 3: March 16 and May 9 and November 15 (?), 2000.
Gettysburg Rally, Gettysburg, Pennsylvania, April 8, 2000
West Chester, PA Lyme Disease Initiative press conference , 13 March 2000
California Lyme disease patients demonstrate Steere presentation, 19 Jan 00
Protest at New York Office of Professional Medical Conduct (OPMC), December 8, 1999
The Poughkeepsie Lyme Disease Conference and Initiative, Nov 1999
Lyme disease patients protest Steere at National Institutes of Health (NIH) lecture, 3 Nov 99
Connecticut LD patients lobby for legislation mandating insurance coverage, 24 Feb 99
Protest at Yale University Lyme Disease Symposium, June 3, 1998
Lyme disease protest at Yale University symposium, May 1997
Seattle protest of Steere, 6 November 1996
Vancouver conference, 1995
New York Lobby Day - March 27, 2001
[S]Tate Rests; Burrascano Defense Begins, East Hampton Independent, 4 Apr 01
Announcement - NY Lobby Day - 27 Mar 01
Lyme disease press conference and support for Dr Burrascano - 9 Nov 2000
Dr. Burrrascano Rally 2000 - 9 Nov 00
Bill's Rally Pictures
Pictures of NYC Rally - 9 Nov 2000
sci.med.diseases.lyme - VERY IMPORTANT NEWS!!
American College of Rheumatology Annual Scientific Meeting - 1 - 2 Nov 2000
Debate rages over Lyme treatment, MSNBC, 1 Nov 00
Pre-Event Announcement, "Teach-Out", protest against Steere
Voices of Lyme (VOL), Press Release, 20 Oct 00
Steere to speak at American College of Rheumatology Annual Scientific Meeting - 1 - 2 Nov 2000
ALDF "Gala" benefit to honor Allen Steere, 1 June 2000
The Vigil - A Smashing Success! - MisTick's Review Part I
The Vigil - Part II of III - MisTick's Review
The Vigil - Part III - Grand Finale - MisTick's Review
Marleen's Photo Album - Steere Protest #1 album
Dissenting Docs - Medical Community at Odds Over Lyme Disease, ABC News, 4 Jun 00
Patients Protest Honoring of Allen Steere, at American LD Foundation Gala, PRN, 1 Jun 00
Steere/ALDF Protest 2000 Home - New York City, on June 1, 2000
Names of protesters at the Steere Vigil, New York City, 1 June 2000.
Steere Vigil/Protest - Photo Album #1 [Marleen O.]
Steere Vigial/Protest - Photo Album #2 [Marleen O.]
Lyme Disease protest of ALDF and Dr. Allen Steere - June 1, 2000 [lots of pictures]
Patients Protest Honoring of Allen Steere, M.D., at ALDF Gala, PRNewswire, 31 May 00
American Lyme Disease Foundation - Announcements - May, 2001 - ALDF Gala Benefit [latest]
Texas Lyme Hearing #'s 1 and 2 and 3: March 16 and May 9 and November 15 (?), 2000.
Minutes, Hearing of Texas Senate Committee on Administration, 16 Mar 00
Real Audio - Hearing of Texas Senate Committee on Administration, 16 Mar 00
Texas Medical Board Report, Clarification on Lyme Disease - Spring 2000
Texas Lyme Website
Gettysburg Rally, Gettysburg, Pennsylvania, April 8, 2000
Ferraroa's Photos, Gettysburg Rally
Gettysburg Lyme Disease Support Group Photos
GETTYSBURG A SUCCESS!!!!!!!!, some feedback from Laura
LD Advocates for improved treatments vow to succeed..., Gettysburg Times, 10 Apr 00
Gettysburg Rally Update
Gettysburg Rally, Gettysburg, PA, April 8, 2000
West Chester, PA Lyme Disease Initiative press conference , 13 March 2000
West Chester, Pennsylvania Lyme Disease Initiative Press conference - 13 March 2000
California Lyme disease patients demonstrate Steere presentation, 19 Jan 00
California Lyme disease - the patient meeting and demonstration at Ventura, 19 Jan 00
Questions to ask Steere
Press release: California LD patients plan Ventura meeting and demonstration, 12 Jan 00
2000 Gordon Research Conference on Biology of Spirochetes
Spirochete Conference Program
Protest at New York Office of Professional Medical Conduct (OPMC), December 8, 1999
Lyme: No Agreement, East Hampton Star, NY, 7 Jan 00 [re NY OPMC protest]
Press Release, Patients protest NY Office of Professional Medical Conduct (OPMC), 8 Dec 99
Lyme protest, December 8th, 1999 New York City....offices of the OPMC
OPMC Protest Press Release - 1 Dec 99
Bernadette's Photos - December 8th, 1999 New York City, offices of the OPMC
OPMC Protest, Report from MisTick
Protest Against Lyme Doctor Harassment, New York OPMC, 10 Dec 99
The Poughkeepsie Lyme Disease Conference and Initiative, Nov 1999
Agenda: The "Bard/Poughkeepsie" Conference, Bard College, November 13-14, 1999
[Notes by Sheree/Kathleen D.] Re: Lyme Conference at Bard College
[Notes by Nancy B.] Lyme Dis. Conference at Bard and video info
Bard Conference [on Lyme disease] Video tapes
Lyme disease patients protest Steere at National Institutes of Health (NIH) lecture, 3 Nov 99
"Lymies" Take a Stab at Steere, The Fairfield County Weekly, 2 Dec 99
Lyme Disease Protests at the NIH "Astute Clinician" lecture, with pictures, 3 Nov 99
PR: Lyme Patients Protest NIH Honoring of Allen Steere, MD as "Astute Clinician", 1 Nov 99
Patients to protest talk by LD discoverer by Michael Lasalandra, Boston Herald, 3 Nov 99
Michael Lasalandra's Boston Herald Guestbook - archives of comment on NIH protest
Patients to protest talk by Lyme disease discoverer - Boston Globe article and guestbook archive
Steere's "Astute Clinician" Lecture videocast, 3 Nov 99 - audio/video
Patients Protest Honoring of Allen Steer, MD as "Astute Clinician" at NIH, Press Release, 28 Oct 99
NIH Director's Astute Clinician Lecture
Connecticut LD patients lobby for legislation mandating insurance coverage, 24 Feb 99
Lyme Disease Patients Win in Hartford, Fairfield County Weekly, By Stefanie Ramp, 06/17/99
Public Hearing on Lyme Disease, Attorney General and Connecticut Insurance Dept., 24 Feb 99
Protest at Yale University Lyme Disease Symposium, June 3, 1998
Protestors at 2nd Annual Yale Rally Question "Authority", Press Release, May 29, 1998
Lyme disease protest at Yale University symposium, May 1997
Yale Protest Follow-up, 23 May 1997
Article from the Hartford Courant re: Yale, 22 May 1997
Lyme disease sufferers protest scientific gathering at Yale, News-Times, 22 May 1997
Seattle protest of Steere, 6 November 1996
Communication between LDF and rally organizer re Seattle protest against Steere, 24 May 97
Post Press release for Steere rally in Seattle, 7 Nov 96
Press release for Steere rally in Seattle [includes 10 questions for Steere], 4 Nov 96
Vancouver conference, 1995
Activists decry physician disinterest in Lyme disease during Vancouver conference, 1995
Miscellaneous articles regarding Lyme disease activism
Lyme Medical, Legal, and Political Issues, Phyllis Mervine, President, LDRC
Picking them off, one by one, The Attack on Dr Joseph Burrascano
Mixed verdict in medical malpractice case [Dr. Vithal Shah case], Bergen Record, NJ, 15 Feb 00
Political Perspectives ... Some of Mine, by David P. Bartholomew
Investigations of Lyme disease physicians by NY Office of Professional Medical Conduct (OPMC)
FAIM: The New York Lyme Disease Controversy - news, bills, the campaign, and history
Physicians' Petition to End Prejudicial Actions Against Doctors Who Treat Lyme Disease, signature count as of 11 Jul 01: 89
OPMC Reform - FAIM's Crusade for Patients' Rights (CPR)
Media Coverage Links - 8 newspaper articles, 9 Nov to 16 Nov 2000
Germ Warfare by Rusty Unger, NY Mag., Part 1 [OPMC actions against LD doctors], 28 Feb 00
Germ Warfare by Rusty Unger - Part 2, 28 Feb 00
LYME-PAC Requests Public Hearings, PR Newswire, 21 Feb 00
Leading Lyme Disease Physicians In Crisis, LDIR News Bulletin, 11 Jan 00
Lyme disease physician investigations - Protest in NYC, LDIR: Press Kit, 8 Dec 99
NY DOH: Professional Misconduct and Physician Discipline
NY DOH: Complaint Form, Office of Professional Medical Conduct
How To File A Complaint Against A New York Doctor
How to Choose the Right Physician - New York State Department of Health
NY OPMC Information for Consumers
NY OPMC Information for Providers
Freedom of Information and Access to Department of Health - NY
How to Make a Freedom of Information Law (FOIL) Request
Dr Kenneth B. Liegner, Armonk, New York
Dr Richard I. Horowitz, Hyde Park, New York
Dr Joseph J. Burrascano, Jr., East Hampton, New York
Dr Perry Orens, Great Neck, New York
Dr Kenneth B. Liegner, Armonk, New York
Google Search: Liegner OPMC - 9 on 12 Jul 01
Google Search: Liegner OPMC group:sci.med.diseases.lyme - 7 on 12 Jul 01
Dr Richard I. Horowitz, Hyde Park, New York
Google Search: Horowitz OPMC - 31 on 12 Jul 01
Google Search: Horowitz OPMC group:sci.med.diseases.lyme - 77 on 12 Jul 01
Dr Joseph J. Burrascano, Jr., East Hampton, New York
NY State Lyme letters regarding NY DOH OPMC investigation of Dr Burrascano, Sep 99 to Oct00
NYU Professor Responds to Burrascano Investigation, LymeNet News, 17 Jan 00
Lyme Update 2000: Letter by Dr Burrascano re OPMC investigation, 8 Jan 00
Burrascano to formally be charged by NY OPMC, LymeNet/LDANJ News Service
Dr Joseph Burrascano Under Investigation, LymeNet/LDANJ News Service
Lyme Conspiracy -- Testimony by Dr Burrascano Before U.S. Senate, August 5, 1993
The Peoples' Petition supporting Dr. Burrascano - signature count as of 11 Jul 01: 835
Medical Community Petition in Support of Joseph J. Burrascano, MD - Sig. count 11 Jul 01: 197
Google Search: Burrascano OPMC - 157 on 12 Jul 01
Google Search: Burrascano OPMC group:sci.med.diseases.lyme - 205 on 12 Jul 01
Dr Perry Orens, Great Neck, New York
Response from the OPMC, RE: Perry Orens, Lyme disease physician, December 1999
Physician Loses License - Dr. Perry Orens, LDIR Bulletin, 29 Nov 99
Response from the OPMC, re letter re Dr Orens [defunct?]
Google Search: Orens OPMC - 52 on 12 Jul 01
Google Search: Orens OPMC group:sci.med.diseases.lyme - 62 on 12 Jul 01
Investigation of Allen Steere in Massachusetts
Questioning Long-Term Lyme Cases, New York Times, 23 May 00.
Investigation of Allen Steere, M.D., Massachusetts Lyme Disease Coalition, 1 March 00
Links/Contacts for Lyme disease activism and Allen Steere action
MEDLINE - Steere AND Lyme disease - 164 citations found on 9 Jul 2001
Citations and abstracts for Steere - as sole author, as of 28 Oct 99
Citations and abstracts for Steere - as primary author in collaboration with others, as of 28 Oct 99
Citations and abstracts for Steere - in collaboration with others, not primary author, as of 28 Oct 99
Lyme disease activism resources
Google Search: group:sci.med.diseases.lyme insubject:protest - 404 on 13 Jul 01
General activist resources
THOMAS -- U.S. Congress on the Internet
State and Local Government on the Net - Piper Resources
Congress.Org -- Your Link to Congress
Contacting the Congress
NetAction's Virtual Activist Training Course
Electronic Activist
How to Lobby: A Citizen's Guide
State medical boards resources
What is a State Medical Board?
Federation of State Medical Boards - Member Medical Boards
State medical boards: Health - NYCU - U.S. News Online
State Medical Boards
AMA (MedEd) Links to State Medical Boards
State medical boards in Canada and the US
United States state medical licensing boards
U.S. State Medical Boards Website Links
State Medical Boards
Links State Medical Boards
Google Search: allintitle:state medical boards
Also see:
Current News on Lyme Disease
Law and Lyme Disease
Insurance, Disability Claims, Health Costs, and HMO Issues and Lyme Disease
Title images from:
Guide to the Ribbons- Green
Guide to Internet Ribbon Campaigns (Frames version)
For more information on Lyme disease see:
Lots Of Links On Lyme Disease
Comments or questions concerning this page should be directed to
Art Doherty.
Last updated on 13 July 2001 by
Art Doherty
Lompoc, California
doherty@utech.net