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October 2000- Update

It's Thursday October 26th. Iam writing this because Iam unable to sleep
and I haven't updated all month. Weird, this used to be my favorite
time of the year as the weather is turning cooler, decorating
for Halloween, and high school football games. The outside
of the house is decorated and the football season for hs is almost
over. My daughter goes to her first Homecoming Dance this
weekend and Iam grateful to be able to watch her turn into a beautiful
young lady. My "monster" is rearing its ugly head it seems,
just in time for Halloween. This time, it feels different.

This time there is no sense of "urgency" to get to the hospital. I seem more at
peace with my higher power lately too. I lay in bed at night
sometimes having a hard time breathing lately due to the muscles
breaking down or ridgety in the chest walls. The fatigue
has started to become overwhelming. Sometimes wanting or needing to do
nothing but sleep. Its never a restful one though, as muscle
and joint pain awaken me along with kidney spasms. My back and leg pain have become more
and more intense.

And yet at the same time, there is this sense of "peace". I cannot begin
to describe it to anyone. But I honestly dont think I'll
be able to make remission let alone next year.
There's a certain "sense" that one has after knowing ones self
and going through such an ordeal that has spiraled so quickly. Maybe Ive come
to terms finally with the monster? or maybe I feel the inevitable
is closer then I realized.

Am I afraid? No Iam really not. As I know I have been the best person I could be
and I have tried relentlessly to be a good wife, mother, and friend. Ive made
my share of mistakes like everyone else. Iam however afraid
for my daughter, as this would devistate her. Being in the formative
teen years and the clostness that we have, Ive always tried to protect her
in her every day life and I know if something happens to be down the road
that I will be protecting her in a different way.
I only hope she realizes this one day. And knows how
very much I love her and how very proud of her Ive been.

For my son, I hope that while he's at Job Corps. he learns what he needs to
be able to make it on his own. To find some sort of peace,and
happiness in his life and the love that he so despirately seeks. I also pray that he learns
patience, and understanding, and trust. As he has not had an easy
journey in his life.

For my husband, I pray that he finds strength everyday in going through this.
I pray that he doesnt blame others or himself as he has done
the best he can to cope with this situation. I pray he finds beauty in
each new day and keeps the compassion he's had to learn how to give.

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