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Breast Cancer Patients Soul Mates for Life |
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It was the beginning of May 1990 as I started my monthly breast exam. I suddenly felt something that hadn't been there the month before. I immediately called my husband and had him feel it. Yes, there was something there but we were each trying to convince the other that it was probably a cyst or something else but not cancer. Those were the longest weeks of my life. Finally on May 18th I called the family physician. When examined me I knew by the look on his face it wasn't good. He said "with your permission I would like to schedule a mammogram and an appointment with a surgeon." He recommended a surgeon that he was familiar with and we went for my mammogram and waited for the surgeon. When he arrived he checked me and the mammogram and said " we are going to do a biopsy." Of course it was Friday so we had to wait for the results. Monday came and the news was not good. Yes, it was cancer. We returned to the surgeons office to discuss our options. We had pretty much made up our minds as to what we wanted, he agreed that a modified radical mastectomy was the best choice for my particular situation. Surgery was scheduled for May 24, 1990 at noon. This is the day that changed my life forever. Surgery went well. My left breast was removed along with 23 lymph nodes. One lymph node came back positive and I started six months of chemotherapy which consisted of Methotrexate, 5fu and Cytoxan. I had no problem with my chemo, just a little nausea, and I lost part, but not all of my hair. I did not have radiation or reconstructive surgery. I did relaxation and visualization techniques all during my chemo and I still listen to one tape every night when I go to bed. I really believe this has helped my recovery. I have kept a positive attitude through all of this. Yes it is scary at time but we have to look for the positive things in life. I no longer think I am super Mom and I stop to smell the roses along the way and enjoy each days to its fullest. My husband has been by my side through this entire journey for which I am greatful. We have headed up a support group in our area, spoken to the doctors at the local hospital and also at Cancer Survivors Day. I have given a speech at Cancer Awareness doings and am cofounder of Breast Cancer Support Group on the Web. We post messages to each other and have scheduled chat sessions. I also volunteer for R A Bloch Cancer Hotline, make afghans for Project Linus and local people going through treatments, our group makes pillows for breast cancer patients to rest their arm on after surgery. I also have a group called Angels By Your Side where I match breast cancer survivors with breast cancer patients and the survivor is the patients "angel" throughout their treatment. I enjoy helping both cancer and breast cancer patients. This is how my website was born. Please take a few minutes to browse, I am sure you will find many helpful sites. If you would like to read the letter my husband wrote after my surgery it is The Woman You Love and is at the bottom of this page. |
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I hope the sites I have picked have been useful to you. I have tried to pick sites that I felt would be helpful and of interest to all. My journey is not over. I will keep up with my check ups yearly for the rest of my life. I owe my life, sanity and well being first of all to God for watching over me these past years and for listening to all the prayers that were and are being said for me. To my doctors who are a very special part of my life. Without them I would never have gotten this far. Their special care, knowledge and friendship mean a great deal to me. To their nurses who have been my guardian angels and who have watched over me. To my husband who has stood beside me through all of my chemo and doctors appointments. He never missed one of them. He has been a source of great strength and courage to me. Also for his love which is never ending. Last but not least to my children, grandchildren, Aunt Marion as well as my many friends who are a very special part of my life. I love them all! |
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This page is for support only and is not inteneded to replace medical advice. |
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You can spend a lifetime or just a few days with the woman you love and no matter the age if that love is sincere anything that happens to that woman affects you. Nothing I can think of can affect you as much as when you discover that the love of your life has a critical illness. What I hope to do is to help you the husband or lover get through this a keep a positive attitude that will in turn help the woman you love. I'm not a doctor, or a clergyman, I am just an ordinary working person. I am however the proud husband of a beautiful lady who just had a mastectomy because of cancer. Cancer, the mere sound of the word is terrifying. For many of us it is a word that means suffering and death. A word you hope will never be used to describe the problem with someone you love. Cancer is there hiding waiting to pounce, waiting to destroy or be destroyed. It will destroy if given a chance but it can also be destroyed if we over come our fear of it and attack it not only with medical means but with a thing cancer cannot survive, a true belief in God and in ourselves. It doesn't matter that we ourselves are not the one with the disease, what matters is that we give our total support to that special person that does. I hope I can help you do this. When my wife first noticed a lump in her left breast we got scared, it couldn't be cancer we were sure of that, it must be only some swollen glands or maybe a cyst. We found the lump just before Mothers Day and finally got up the courage to go to the doctor on the 18th of May. Before going we prayed and almost had ourselves convinced that the lump was getting smaller. We also read as many articles as we could get our hands on in the hopes of confirming the problem as a minor one. Going to the doctor was however the only sure way of finding out. Once at the doctors office we watched every expression on his face hoping to see a look that tells us that everything is OK. The look doesn't come, instead there is a look of concern a look that tells you that what you dread may be the answer. "If I send you for a mammogram this afternoon can you go?" With your heart down around shoe top level you manage to answer yes. The doctor leaves the room to call the hospial and you look at each other, there still is a chance it is not cancer, but the odds are getting smaller. This is the start of what could be the worst time of your life. But believe me, as bad as things look at the time your faith will give you a strength and understanding that will last for a lifetime, both yours and hers. Join me as I explain the feeling I had and the feeling others have had in the same situation. Don't be afraid to feel them. Don't feel you are alone, don't be afraid to cry, it's not the sign of a sissy, it's the expression of hurt, anger and fear. My dear friend if you think you can make things better by ignoring you feelings you are wrong. One of the first things you feel is helplessness. You are not accustomed to that feeling. The woman you love is now out of your ability to help. What can you do now? You can't give her a pill, put on a bandaid or make the problem go away. It's true there really isn't anything you can do except be there. I want to tell you that being there is more important than pills or Band Aids. Being there is the best medicine you can give at this time, and it grows more important in the days to come. Yes you will feel helpless, I know I did and in many ways I still do. That's ok, make good use of this feeling and you will find that you will compensate for it by being there, by holding, by hugging and by crying together. Very important at this time is to express your feelings to each other, it helps for you to understand what she is thinking and she wants to know what you are thinking. Don't be afraid because if you love each other expressing your feelings will only make things easier as you go through the days to come. Feeling angry is also a very strong emotion, I was angry at just about everyone including my wife. I was angry at my wife for being sick because I felt by her getting sick she was robbing me of my ability to care for her. She wasn't the one to get sick, that was my responsibility. Sounds stupid?? It is, but it runs in your thoughts just the same. I was angry at God, why didn't He go after the ones that deserve this, why pick on my wife, besides if He was mad at me why hurt her? This anger came from my feeling of helplessness more than from anything else. The feeling that maybe if I got God mad at me, He would take her sickness away from her and give it to me where I could deal with it first hand. You start to react to the feeling that you don't need Him. You'll find out in the days to come that your anger has made your faith even stronger. God is most likely going to become your best friend, you can get mad, you can yell, and in the dark hours when you are all alone you can talk to him and not be afraid to say what you feel. The answers may not be the ones you want, but God answers and that you can be sure of. I must say that I am not trying to push God down your throat but it sure helps to talk. The answers are in, there is no question that there is cancer. The choice is to be made, do you consider a lumpectomy or mastectomy. This is a decision that should be talked over after you know all the facts. Don't try to decide this until you have talked to your doctor. Find out what the chances are with each choice and make a decision together, it will help both you and your loved one feel better. Choosing to have a mastectomy was something we thought about before we even talked to the surgeon. Once given the options we talked about them as well. Cancer is new to both of you, but your doctor has this to deal with constantly so get the facts and if possible talk to someone who had both types of treatment. Our choice was made easier when our surgeon said that if you were my wife he would remove the breast. Please remember to talk about it, don't just say what ever you want is fine with me. Your loved one has enough to worry about without the burden of making this choice herself. Also be sure that when you help her decide you are prepared to support that decision. Your not alone in wondering how you will react to having your wifes breast or breasts removed, I did, you will, and most of all so will she. Natural yes, frightening yes, after all this is a major operation and something is being removed. I liked my wifes breasts, but they were just a part of her not all of her. Her breasts were not what made me love her, I love her for what she is. I feel that there is much more to a person that makes us love them that goes well beyond their physical appearance. Besides if left untreated the ultimate results would be much suffering and most probably death. Television has done more to program us in the way we should look, the way we should act, and in the way we should think. I believe that more than anything else it has programmed us to stop thinking for ourselves. What you see is total media hype on what we are to look like, act like, what we should eat, drink, and after seeing this for a long time we give up being individuals and conform. I've noticed more commercials and programs that portray the female anatomy as being one with large breasts and we begin to associate this trait to all women. Men if suddenly they started focusing on the size of our penises, how would we feel about it? Unless we learn to love a person for what that person is we had best give up on the idea. If your television was taken away would your life be that bad? Would you survive? In many cases I think not. Don't judge your reaction to your wifes illness by what you see on tv. She deserves better. Base your reaction on your love for her, face her problems with her, talk to her, shut off the damn tv and visit with each other. You will find that there is a very precious person living in your wifes body, and also that the person in your body is precious. You are going to be afraid to talk to her, mostly because you won't want to hurt her. I felt that way, but I made myself do it, and the more we talked, the easier it got. Give her the outlet to express her fears, and give yourself the same outlet. After all who better to discuss your fears with than the person you love. If what you might say hurts, work on it, she will understand. If what she says hurts work on that as well, remember that there is a lot of anger on both sides and when it comes to the surface it can be dealt with, if left inside it will just fester. My love and I talk more now than we ever have and its great. Talk to friends that you can confide in, it helps, and if they are true friends they will understand. What I want you to understand is that you should not keep your feelings bottled up inside of you, get them out and work on them. You are not alone there are many of us out there and I fear there will be many more to come. What about sex with your loved one?? Will it be safe? Will it be the same for her? Will it be the same for you? As far as will it be safe, don't hesitiate to ask your doctor. If the doctor says its ok, ask your loved one. If she says its ok, then by all means do things the same way as before. Remember the woman you love is still there and she needs to feel that inspite of what is happening you still want her. Don't be afraid of looking at her, in fact make a point of helping her change her dressing. Help her in ways that show her that you are fully aware of how she looks and to you she is still beautiful. I'll tell you that by doing this you will not only be helping her, you will be helping yourself. You will overcome your fears, your hurt, and you will without even realizing it find that your love has grown stronger. Take time to adjust, don't think it will happen over night, it won't. Don't lie to yourself, you both need time to adjust. Use the period of adjusting to talk to each other, to ask questions, to show your feelings. What you will find is that when you both feel comfortable with each other, sex will be as good if not better. You are going to worry about her, and try to protect her from as many things as you can. You will find you get angry at people who are just trying to be nice. I realize people can be real idiots sometimes but for the most part they are truly trying to help, let them. Having friends that care is important. If they dwell on the subject too much however tell them to stop as soon as the opportunity avails itself, they will understand. If you have children be honest with them, its their mother and they have a right to know and share with the two of you. Families can combine all their strengths and together they can conquer many problems. I have not used the word terminal because I believe that although the disease is very serious there is no room for terminal. There is only room for getting well, for life, and underlying everything there is a lot of room for love. You will think to yourself what will I do if she dies? I did, but that passed, now I think about all the things we are going to do together. I am positive in her recovery, I am positive in knowing how strong the medicine of my love can be. I know there will be more tears, more worries, more times of anger. I also know that we will get over them. I think that her illness has proved beyond any doubt that God is with us, and that He has given us the strength to get through. I also know that I appreciate her more and love her more because the woman I love loves me. There are times you will experience emotions you never had before. If they get the best of you get help from someone qualified to help. Don't be ashamed to ask for help, you have a lifetime to spend together, make the best of it. Chuck |
The Women You Love |
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Click above to see my beautiful handmade ornaments. |
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Please stop by a very good friends site The Cancer Club for many beautiful gifts and books. http://www.cancerclub.com |