I have added many more links to this page. If you have been here before, please look around. i will try to figure out which ones are new, and somehow show that they are! If you have any links that should be here, please email them to me to flipsemom@catholic.org


New Link May 6 '05 A new Message Board for PH'ers bye Sean aka Tat

New Link 4-4-05 Flolan Fashions from Vickey Haywood

NEW LINK 4/25/04A support group for Fibromyalgia

New link 3/5/03 Share Your Life.org

New link 3/5/10United Network for Organ Sharing

new link Feb 28,2004 The British Columbia Pulmonary Hypertension Society

Inhaled Iloprost for severe Pulmonary Hypertension. From the Drug Info Zone

New England Jurnal of Medicine Report on Inhaled Iliprost.

new link Feb 7,2003 Race for PH.org

Tips for living with Pulmonary Hypertension with yours truely as the editor.

Australian Pulmonary Hypertension support

Ambristentan, a new drug currently being tested for Pulmonary Hypertension

German Pulmonary Hypertension website with chat room, Way to go Ralf

new link dec 29,02 I Call My New Lung Tina. a book written by a dear friend before, during and after transplant. check it out and read her book.
new link june 15,02 Gentiva sold their critical care section to a new company names ACCREDO HEALTH this is their webpage
new link march 14 Young Lungs home page
new link march 12,02 Visit Liz's page. A fellow Ph'er.
new link march 12,02 Patient Travel.org
new link march 12,02 pph institute, run by lawyers, i believe, but still good info
new link march 12,02 The home page of TRACLEER, a new PH drug
new link march 12, 02 MY CHRONIC ILLNESS.com
new link 11-13-01

new linke 11-13-01 MD CHOICE

new link 10-19-01 Aqua Guard. A Unique Solution TO Cumbersome problem of covering and protecting wounds

new link 10-19-01 Hickmancare

new link 10-19-01 Social Security Online Disability Programs

Skyler's Site

new link 10-19-01 About Heart Failure

new link 5-30-01 FLolan Information Center

new link 5-30-01 Effectiveness of Flolan

new link 5-30-01 How To Read & Interpret Your Laboratory Blood Test Results

new link 5-30-01 How to review your blood test results

new link 5-30-01 NeedyMeds.com The Place to Learn About Pharmaceutical Manufacturer's Drug Assistance Programs

new link 5-30-01 The Disability Travel Experts

new links 10-2-00 GENTIVA NO LONGER DEALS WITH FLOLAN OR PPH .....but i'll keep the link just in case someone wants it still.


Organ Donation… It’s all about LIFE.


American Lung Association® Fact Sheet: Primary Pulmonary Hypertension (PPH)


Heart Rate and Rhythym Tachycardia


Theracom


Center for Drug Evaluation and Research



new link 7-31-00 Olivija's webpage with so many wonderful links from a to z


new link 5/10/00 Jason Gellis's Page


new link 3/15/00JoAnne's home page with info on PPH


new link 2/14/00 this is about EPHEDRA and Ma Huang one of the appeitie suppresants in dieting supplements and how harmful they realy are


new link 2/4/00 The company that makes our hickman's, groshong's and other catheters



new link 10/23/99" Medical ID & Information Card Hospital Emergency Room personnel often experience situations where the patient can't give vital health information."


also new Location Center for Pulmonary Heart Disease 1725 West Harrison Street, Suite 020 Chicago, Illinois 60612-3824 ph 312.563.2169 fx 312.563.2487 email PPH@rush.edu

The PH CENTRAL homepage. a brand new site for ph patients,families, and caregivers

Pulmonary Hypertension Association

Pulmonary Hypertension Meds Not to Take

Pulmonary Hypertension Cure Foundation

European Pulmonary Site

NEW interesting case study!!!

Welcome To Healthworks Online

Drug Watch: Prostacyclin in primary pulmonary hypertension

NATIONAL INSTITUTES OF HEALTHNATIONAL HEART, LUNG, AND BLOOD INSTITUTE

Harbor-UCLA Research and Education Institute

The New England Journal Of Medicine

Lori Noyes' Organ Transplant Resources Page

The Pulmonary Hypertension Society Of Ontario



Compassionate Use of Continuous Prostacyclin in the Management of Secondary Pulmonary Hypertension: A Case Series

CONGESTIVE HEART FAILURE

American heart.org

The Organ Transplant Ring

Welcome To United Therapeutics

The Daily Lung covers lung disease

Use this site to find address for politicians. Write to them requesting funds for the cure to PH!!!!! we all need to do our part!

medic on line

POST GRADUATE MEDICINE How to manage secondary pulmonary hypertension

Simms Deltec. The company that makes our cassettes, and extension tubing for flolan use.

The Mayo Clinic: Pulmonary Hypertension: Diagnostic Workup Guy S. Reeder, M.D.

COMMONLY ASKED QUESTIONS ABOUT LUPUS

The Chronic Lung Disease Forum Live Chat Room

Transplant News Network:Epoprostenol Reverses Primary Pulmonary Hypertension in Long-Term Study BOSTON · February 15, 1998 · by TNN Medical Reporter Virginia Baskerville

From American Heart Journal High-Dose Enoximone to Evaluate Reversibility of Pulmonary Hypertension: Is There a Diagnostic Value of Neurohormonal Measurements?

ihavescleroderma.com



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