by Jean March
When I am sick, I go to the hospital and someone takes care of me. I feel bad
but medication helps.
When I am sick, my husband comes to the hospital also. He worries about me. He
makes sure I am receiving the best of care. He brings me whatever I need and
helps me mix the flolan. He follows the nurse to the refrigerator to make sure
she places the ice packs in the freezer and the cassettes in the refrigerator
and not vice versa. He calls me several times a day to make sure I am OK. If I
have procedure, he is there waiting for me when I return to my room. He visits
every day. He loves me.
He also has to go to work and take care of everything at home. He has to
explain to the dog that not only has she been alone all day long but now he's
too tired to spend much time with her. If he has any time left, he takes care
of himself.
PH affects the Caregiver more than anyone can realize. They live in constant
awareness that their loved one may become ill or need their help. They make
important decisions based upon what the doctors think will happen. They live
their lives under a tremendous amount of PH stress.
Perhaps the researchers can come up with a much needed cure for the PH
Caregiver. Perhaps this cure should help them sleep better, give them more
hours in the day and help them worry less. Perhaps it can give them the wisdom
to make important decisions based upon supremeknowledge of what this disease
will do with their loved one.
To all the caregivers out there, "We salute you!"
So, if you are a caregiver, remember how much you are appreciated. If you have
a caregiver, don't forget to tell them how much you appreciate them.
Jean March was a caring, supportive, loving friend of all in PHFriends. She is missed dearly. Jean died on January 29, 2002 of Pulmonary Hypertension. She was 46 yrs old.
This page is dedicated to Jean March and her husband Bill.
Bryson's Story, his dignosis, struggles and one year anniversary
This is an article taken from the Sandusky news!
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