Asociaciones Internacionales y Centros de Investigación
de Desórdenes Neuromusculares - DNM
WORLD ALLIANCE OF NEUROMUSCULAR DISORDER ASSOCIATIONS (WANDA) EX - WORLD ASSOCIATION OF MUSCULAR DYSTROPHY ASSOCIATIONS (WAMDA) General secretariat Secretariat a.i. Vredehofstraat 31 3761 HA The Netherlands Tel.: +31 35 6034052 / 683 1920 Fax.: +31 35 6027440 E-mail: Landfort@tiscali.nl http://www.wandaweb.org/ http://www.worldmuscleforum.org/about_wanda.htm
Ysbrand Poortman, vice president WANDA c/o European Neuromuscular Centre (ENMC) Lt.Gen. van Heutszlaan 6 3743 JN Baarn THE NETHERLANDS tel. +31 35 5480481 fax +31 35 5480499 e-mail: enmc@euronet.nl, enmc@enmc.org The European Neuromuscular Centre - ENMC Lt.Gen. van Heutszlaan 6 NL-3743 JN Baarn The Netherlands tel (31) 35 5416093 fax (31) 35 5421616 enmc@euronet.nl, enmc@enmc.org http://www.enmc.org
EUROPEAN ALLIANCE OF MUSCULAR DYSTROPHY ASSOCIATIONS (EAMDA) President: Evald Krog Secretariat 7-11 Prescott Place London SW4 6B5 UNITED KINGDOM 44-207-720-8055 44-207-498-8963/0670 (Fax)
World Muscle Society, Prof Victor Dubowitz (President) Haluk Topaloglu, secretary, Prof. Giovanni Nigro, WMS Treasurer Viale dei Pini 101, 80131 Naples, Italy Fax: +39 081 5665100 - +39 081 7414775 Tel: +39 081 5665300 E-mail: giovanni.nigro@unina2.it Internet address: http://www.worldmusclesociety.org/
MDA OF USA - MUSCULAR DYSTROPHY ASSOCIATION - USA National Headquarters 3300 East Sunrise Drive Tucson, Arizona 85718 http://www.mdausa.org
mda@mdausa.org, experts@mdausa.org Mediterranean Society of Myology, Viale dei Pini 101,1-80131 Naples, Italy tel +39 81 7419545 fax +39 81 5665100 E-mail gionigro@ds.unina.it MuscleNet Aims at informing scientists, doctors and laypersons about muscle biology and neuromuscular diseases, sponsored by Telethon-ltaly, MDA of Italy (UILMD) and the University of Padua, Italy. http://www.unina2.it/cardiomiologia/FILES/emsm.html
Généthon, France GÉNÉTHON - Human Genome Centre 1bis, rue de l'internationale - BP 60 - 91002 Evry cedex - France http://www.genethon.fr/php/index.php http://www.genethon.fr/php/index_us.php
World Muscle Forum Wanda Conte Academy Forum http://www.worldmuscleforum.org/
World Federation of Neurology 12 Chandos Street London W1G 9DR United Kingdom Tel: +44 20 7323 4011 Fax: +44 20 7323 4012 E-mail: WFNLondon@aol.com http://www.wfneurology.org/
The Society for Muscular Dystrophy Information International P.O. Box 7490, Bridgewater, Nova Scotia, B4V 2X6 CANADA Phone: (902) 685-3961 Fax: (902) 685-3962 Email: smdi@auracom.com http://nsnet.org/smdi/